Over The Hill and Under The Radar

A blog for women of all ages who feel they are being ignored

NHS Digital Data Opt Out

Are you aware of the NHS Digital Data Opt Out?


The National Health Service (NHS) in the UK holds millions of our health records.


These are very sensitive details about our health, which have been recorded over our lifetime.  This is our personal record of our health and well being.


However, from 1 July 2021 The Register has stated that NHS Digital has announced that ‘data may be shared from the GP medical records about……any living patient registered at a GP Practice in England


How do you feel about that and what can you do to opt out?

NHS Digital Data Opt Out

NHS Digital which is the health and social care system information and tech partner can take the following information from the GP records which is YOUR personal information. It can include the following

  • Diagnoses
  • Symptoms
  • Observations
  • Test Results
  • Medications
  • Allergies
  • Immunisations
  • Referrals
  • Recalls
  • Appointments
  • Physical, Mental and Sexual Health
  • Information on staff who have treated patients
  • Data on sex, ethnicity and sexual orientation
  • Plus other sensitive data


You have until 23 June 2021 to opt out https://medconfidential.org/how-to-opt-out/ 

Data will be taken from 1 July 2021 if you do not opt out


For many of us this is worrying. Why you may ask? A good example is if your data is sold to a life insurance company then your premiums could increase as they may think you are a high risk. Alternatively they might not insure you based on your ‘medical history. Currently insurance companies will not have access to the data but how long will that last?

Also what if your data has been input incorrectly and you do not know?


How safe is the data?

On the NHS Digital site it states that it is publicly funded and operates on a cost recovery basis and does not charge for data – the only costs being the cost of processing and delivery of service. It also confirms that there is a lot of protection in place to make sure the patient data is used securely and safely. However in my opinion it would be easy for a very experienced hacker to get the details.

Who can access the data

This can include the following

Research bodies and organisations

University researchers

Hospital Researchers

Medical Royal Colleges

Pharmaceutical Companies who are researching new treatments

It has also been said that your personal data will not be used for marketing or insurance purposes unless you request this.


So I suggest you look into this as I am one who will opt out as I do not want my data shared. Remember you only have until 23 June 2021 to opt out



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